Day 18

Boy it has been a long time since I have been able to update, but we finally have our internet turned back on. I know most of you already know that we came home on monday afternoon. He was having some trouble eating like they wanted to this past weekend when we roomed in with him. The problem is that he sticks his tongue to the roof of his mouth and therefore couldn't suck, now that we know this we know how to get him to eat. Once he started eating there was no stopping him. We had a dr visit yesterday and he now weighs 4 pounds 10 ounces, BIG BOY! We are thrilled that he is gaining weight. The orthopedic pediatrician says his hip ultrasounds have all been normal and that he wants to see him back in two weeks for another one. We don't see the geneticist again for 6 months. We will be starting physical therapy hopefully next week to work on his legs that way to see if it will help. About his arm, they think that what caused it was an amniotic band. These bands are in the fluid of all pregnant women and can place themselves on any part of the body. For us it was the arm, for some they aren't so lucky it can deform the face or the trunk of the body. We feel very blessed to have such a special boy and know that this won't keep him from doing anything he wants to do! God still has big plans for him, we just don't know what yet! Well, I hope to blog more often now that the internet is back up, it may be boring day to day events from here on out so if you stop reading I will TOTALLY understand, lol. Have a great day!